The Fibroid Foundation Celebrates 10 Years of Advocacy

The Fibroid Foundation is celebrating 10 years of advocacy and hosting the 3rd Annual Fibroid Research Summit. Since 2013, the organization has been a leader in uterine fibroid advocacy — a health concern that affects 26 million women in the U.S. and millions more globally. This milestone anniversary marks a decade of erasing menstrual stigmas, designing and authoring research studies, providing access to treatment resources, and leading the way in initiating legislation on uterine fibroids and menstrual health. 

Founder Sateria Venable reflected on the past decade by saying, "I'm grateful to each community member, clinician, donor, and legislator who recognizes the importance of eliminating menstrual suffering. Menstrual health should be a concern for our community at large because it impacts each of us."

To join in the celebration, all are encouraged to visit the Fibroid Foundation's website to learn more about the 10th anniversary and the events planned. 

Fibroid Summit Program:  

Day 1 — Sept. 20, 2023, at 11 a.m. ET 

Dr. Serdar Bulun, Northwestern

William Catherino, M.D., PhD, Uniformed Services University of the Health Sciences 

Day 2 — Sept. 21, 2023, at 11 a.m. ET

Dr. Mazhar Adli, Northwestern

Shannon Whirledge, PhD, MSc, Yale

All panels will be moderated by Sateria Venable.

Register here.

Uterine fibroids are the most common gynecologic condition in women, yet research remains underfunded. Dr. James Segars, Director, Division of Reproductive Science and Women's Health Research, Professor of Gynecology and Obstetrics at Johns Hopkins University, authored a 2020 paper which concluded that, "In the subsets of bodily pain, vitality, and social functioning, fibroids were consistently a larger burden than heart disease, diabetes mellitus, and breast cancer."1 

The Fibroid Foundation continues to advocate for the passage of The Stephanie Tubbs Jones Fibroid Research and Education Act — H.R. 4572 and S.2303, introduced by Representative Yvette D. Clarke (NY-9) and Senator Cory Booker (D-NJ), respectively. Continued community support is requested by residents in each state to achieve the Congressional support required in order for both bills to be passed into law. Letters can be sent to your congressional representative via this link.

According to The Fibroid Foundation, patients are suffering in silence. Community members express concerns about limited treatment options, the high cost of treatment, insurance coverage, and difficulty finding fibroid specialists. The organization recognizes the significant health disparities that impact its community and provides support to address the disparities from a unique patient perspective. 

Fibroid Statistics: Visit the National Institutes of Health Fact Sheet on uterine fibroids to learn more

This year's Fibroid Summit Sponsors are SumitomoPharma/Pfizer and Omnia.

To partner with The Fibroid Foundation, visit

About The Fibroid Foundation

A global organization founded by fibroid patient Sateria Venable in 2013, The Fibroid Foundation has coauthored 16 medical articles, purposefully leveraging the patient experience. 

For Media Inquiries: 
Karen Janus
Phone: 844.484.7698 (IT-IS-MY-U)
[email protected] 


Contact Information:
Sateria Venable
[email protected]

Original Source: The Fibroid Foundation Celebrates 10 Years of Advocacy